On June 25 2009, I got news about Michael Jackson's demise just like many of you. I took that news rather hard because I grew up to Michael Jackson and his brothers in the Jackson 5. Now usually given a few years I would struggle to remember that date. However this date I am sure to remember because not only did Micheal die, but it was the day that I found out that I had a brain AVM which had bled.
What is an AVM? That is the very same question I asked the doctor. He informed me that an AVM (Arteriovenous Malformation) is a cluster of capillaries that is not properly formed. AVMs are congenital and can be found in all parts of the body. Mine, as I said was on my brain.
I was at home when my AVM bled. If felt in instantly. First I heard a small pop sound in my head then I had such a headache like you would not believe. That coupled with my vision going blurry, losing my balance and perspiring perfusely told me that something was wrong. So what did I do? I drove myself to the hospital. A vertigo and aneurysm diagnosis later I was laying in the emergency room at St. Joseph's hospital crying and thinking this sucks. You see, some number of years ago an aneurysm claimed my oldest brothers life. I followed in a lot of his footsteps, but not this one.
After I was transferred to one of the leading neuro surgical hospitals in the country, University of Maryland Medical Center a young resident correctly diagnosed my problem as an AVM not an aneurysm. A few angiograms, CT scans, MRIs, a crown screwed to my head and 25 minutes of radiation, I still can't be sure if this thing is under control. I have to wait four months for a follow up visit with my neurosurgeon to know if the problem is going away.
In the mean time, I just have to wait. With every little ache of my head I am sure that my pressure rises out of concern for what it could mean. I am not one to pray, but I am thinking positive thoughts that will create an environment in which I Will Survivve (Gloria Gaynor).
PS. I hope this all fits no problem...
Hello Greg! Glad to hear that you were properly diagnosed and had what sounds like Gamma Knife to treat your AVM.
ReplyDeleteWe have a great support community at www.avmsurvivors.org that you should check out. Lots of people who know exactly what you experienced. Many of them have had the same treatment and played the waiting game as well to find out if it was succesful.
I wish you the best on your road to being AVM free!
Shalon
Shalon, Thank you for the sharing the group's information with me and the well wishes. I will definitely stop over and check it out...
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